Welcome

Darren and Sonia Sheppard's first son Cody was born on the 28th April 2004 and was diagnosed with a rare condition called Pontocerebellar Hypoplasia type 2. The Genetic Specialist advised and reassured Darren and Sonia, that it would be very unlikely for them to have another child with the same condition. Sonia gave birth to their second child Ben on the 17th of November 2005. They were so relieved that Ben did not have the condition, and they couldn't wait to be parents to him and give Cody a little brother.

Cody passed away on the 5th of September 2007 at the age of three. Through grieving for Cody, Darren and Sonia wished that Ben had a brother or sister to run around and play with. Sonia became pregnant, and was reassured throughout the pregnancy that everything with the baby was perfect. On the 4th of May 2010, Darren and Sonia's third son Dylan arrived. He was diagnosed with Pontocerebellar Hypoplasia type 2.

The purpose of this website is to share information about the condition, and to support other families who have children that have been diagnosed with the condition.

This website is dedicated to Cody and Dylan. It is in memory of Cody who was so brave and was faced with so many challenges during his short life. We will never forget how brave he was and we will never forget his gorgeous smile.

Darren & Sonia Sheppard

7 October 2011